First I want to thank SBAA https://www.sbrunning.org/ for continuing to have a link to my blog on their site. I hardly feel like I deserve it – the posting (and running) I have done in the past few years has been at best minimal. But it sure makes me feel good to see that link still there. Thank you so much guys!!!
Hal is still very much alive. His ALS has progressed a lot since my last post. He doesn’t have much ability to move his body – just his head, a little. He can’t talk or swallow – even his tongue is paralyzed – but he can still smile, and that beautiful smile is like sunshine.
I am still getting out a little – mostly for 45 minutes or less, unless I have a nurse or other medically trained person to help Jason monitor Hal. Besides the boring stuff like going to the market, my most frequent “escape” is to go for a short run with our dog Elsa, or even better, go for a run with Elsa and a friend.
I am grateful that our son Jason is able to live with us – both he and I are now full time caregivers for his dad, and that’s a huge job!! I am also grateful for the many people who express concern and have helped us keep Hal alive and happy.
Life is different now, but it’s still good.